The UCSD Biochemical Genteics and Metabolomics Laboratory and the UCSD Cystinosis Determination Laboratory does not collect or maintain any personal information of website visitors. No patient-related informationis stored or uploaded.
We do not actively collect any personal information about website visitors unless a visitor chooses to send an email message. The website may maintain a standard Internet web log that includes IP addresses and other information about visitors. We do not routinely review or use the information in a web log. However, if we suspect hacking, harassment, or illegal activity on the website, we may review the web logs and share them with law enforcement agencies or others to identify responsible individuals.
We do not use and do not disclose contact information about guests or users of this site We may hire third parties to help us provide services.
Access, Correction, and Data Quality
We try to maintain accurate records, and we need the assistance of data subjects to maintain complete and current records. Anyone who finds the information to be inaccurate or incomplete may submit a request for correction to the UCSDBGML Administrator.
Contact information for the UCSDBGML Administrator is at http://cystinosiscentral.org/Contact/
Complaints and Questions
Address questions or complaints about this policy to the UCSDBGML Administrator.
Version 1.0 03-May-2015 First Public Version